Apologies for the break in the blog. I’m sure you all appreciate this has been an unbearably sad time for me and OH. Thank you all so much for your kind words, card and gifts. Rog will always be in our hearts and I’ve no doubt he will pop up as I recount some other tales as we go along this journey.
But for now I need to bring you all up to date with my treatment and the new joys Mr T & Mr M have been bringing me….
Current status – massive eruption of spots; looking distinctly like a glue sniffer right now. Nothing has change in my diet or with the meds yet I woke up on Monday like a hormonal 17 year old. You could play join the spots on my face. I sent my sister a photo and even she agreed it wasn’t something I should be sharing on here. And she’s the positive one!
Needless to say I’m not venturing much further than the village shop and that’s with a scarf wrapped round me.
Before we lost our boy I had my latest appointment at the immunotherapy clinic (I was nearly clear skinned then). The cough that won’t go away was investigated again and we discussed that I have a burning in my throat, like acid reflux. They prescribed Motillium.
If you’ve ever worked with me you will know my work bag usually holds a myriad of weird & wonderful drugs for tummy bloating. My favourite was always Buscopan but I don’t think you can buy that over the counter any more. Motillium was another favourite so I was surprised – what can that do for a cough? But lo & behold, it seems to have done the trick. They know a thing or two these docs.
I confessed to worrying about my scan; that it was preying on my mind. Of course, I know that I am incredibly lucky to be on this treatment but in the dead of night I can still convince myself I can feel a new lump or bump.
The consultant assured me that my tests are all coming back clear and that their concern is only – surprise – my blood pressure & signs of fatigue due to the meds. Their concern was strong enough to sign me off for another 8 weeks, so still no return to work for me just yet.
We decided a change of scene would do us both good so we headed ‘up the country’ to see our friend who has recently bought a beautiful property with some land and stables for her horses.
I think we all know that even though I own some fabulous Joules wellies, I’m really not the outdoorsy type. The journey was 5 hours to reach her so we didn’t have a tour of the stables until the next morning.
Unfortunately I had already munched into half a home made muffin before I remembered I hadn’t taken my meds. I figured it wouldn’t matter and quickly took them. Wrong!!!!! When they say an empty stomach, they really mean it. Welcome back nausea with a vengeance.
Obviously when you’re at someone else’s house, even when you’ve known them 30 years, you still don’t want to be a party pooper or a drama queen – always tempting on my part I must confess. So off we went to explore the fields and the stables. I also thought the fresh air would help.
The fresh air was ok, didn’t really help, but the stables finished me. It’s beautifully clean – a proper horsey hotel – but the smell of the hay! Oh my word – I feared yesterday’s breakfast would make a reappearance. I beat a hasty retreat. The rest of the day was spent on the sofa watching rugby. Thanks Mr T & Mr M, I don’t see my friend for ages and you bring on the nausea to stop any partying in its tracks.
It was hard coming home to an empty house, especially as Rog had got so good at knowing when I was unwell. But the next day we went for a walk on our nearest beach and how could your heart not feel lifted and a tiny bit healed at this sight?
This morning my scan date has come through – 19th Feb. I am both pleased and scared at the same time. It’s another one with a dye so you can look forward to the tale of wrestling with my veins.
I’ve also ordered a small trampoline. I can hear you laughing already, but apparently bouncing is fantastic for the lymphatic system. I won’t tell you what type of bouncing OH suggested would be more beneficial! So brace yourselves for, no doubt, comedy injury stories with the impending mini trampoline.