Here we go!

Monday morning arrived and I opened up the various bottles. The Mekinist has to be kept in the fridge – personally I think this is only to make it look more important than the Tafinlar, but I guess there probably is a scientific reason for it. Not just that Mekinist wanted top billing like film stars and when they get refused top billing they insist on the ‘also starring’ at the end.

My meds cocktail is ‘also starring’ Lecalpin, the blood pressure tablet. So the breakfast cocktail is two Tafinlar, one Mekinist and one Lecalpin. They have to be taken either two hours after food or one hour before food. Either way, your stomach needs to be empty. You can’t take them with anything else other than a large glass of water. Now, even I am not on the pop at breakfast time, but I generally take any tablets with a fruit juice or a glass of milk. No such luck with these bad boys.

I may have eluded to my occasional dramatic ways; well me swallowing tablets with water ranks right up there in Celine Dion fashion. Now I have learned to add photos, here you go with a pic of my morning cocktail:

The two big capsules are the Tafinlar. There is an extra goodie on there as a new blood pressure tablet has since been added, but that’s a whole other story!

Today, being the first day, after I took the cocktail I went back to bed. To be honest, I was feeling a bit sorry for myself. I’ve deliberately stayed away from the delights of Phil & Holly in the mornings as I know I would become addicted and never want to go back to work. When I got up at 11am – I know, the sheer luxury of it all – I was boiling hot and my face resembled a beetroot. This went on for about an hour. I appreciate a rosy complexion is supposed to be healthy but this was more the face of someone who had downed a bottle of red in the sauna. Not actually something I have tried, but there is still time.

The meds need to be taken with 12 hours in between each dose, so at 8pm I took the remaining Tafinlar and sat back expecting more hot flushes. Not so. As I was soon to discover, these meds are the gift that keeps on giving with a surprise side effect most weeks. As I sat on the sofa, my arms started to hurt. I had been warned of joint pain but expected it to be shoulders or knees. This was between my elbows and wrists and felt as if my arms were swelling. It was the strangest sensation.

My partner thought I was having some kind of pink elephant moment as I sat there, staring at my arms! But I genuinely expected to see them swelling. Of course, there was nothing to see – other than maybe more of my marbles getting lost.

That old friend nausea also came to play for a while and brought along a cracking headache with it. Thankfully neither of them lasted too long and Day 1 was over.

Published by rogersmum

I live in Co Kerry, Ireland with my partner, Paul. I was diagnosed with Stage 3 Cancer in 2019. This blog is about my journey through Immunotherapy - the ups & the downs

2 thoughts on “Here we go!

  1. Well I shall think of you as Hot Legs Rachel from now on, in a sort of fun sexy way❤️ Oh Rachel I’ve laughed and had a few tears❤️ You are an inspiration and an encyclopaedia of knowledge given in a fun way which will help countless people. You really should write a book xox

    Liked by 1 person

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